The stories on these pages are from people affected by dementia.
I have found myself, at the age of 62
In a place that I never thought I’d be
I have a husband, children, and grandchildren. Let me tell you a little about me……
My mind is in a fog, my days seem empty
No longer can I work – the future seems bleak My memory is going, and anxiety now haunts me Every day it’s just normality that I seek
33 years ago my Mother was diagnosed with Dementia.
The Doctor told my Father and me that Dementia meant Mum's brain cells were dying, and nothing could be done.
She would soon be institutionalised in Kenmore Mental Asylum - a very old, lock-up facility. This left us feeling helpless, hopeless and broken-hearted over what was happening.
The illness progressed as expected, with Mum "living" her last 4 years in Kenmore, not recognising me, not talking, and cared for by people who were not able to help us connect in any way.
I have tried so very, very hard to keep my husband, with Alzheimer’s, at home for as long as possible, and not place him in a Nursing Home.
My name is Wendy and I am 54 years old. Prior to my diagnosis (which was 3 years ago) I was working full-time as a Payroll Officer and I was a sole parent with my 22 year old daughter living at home.
It was in my work place that I first noticed something was not right. I had been in Payroll for 18 years and couldn’t remember how to do back pay or remember the meetings that I had attended. So after becoming quite concerned about what was going on at work I went to my GP of several years.
My mum’s story is a tragic one, although there was a silver lining in the end.
Since I was 9 (I am currently 45) my mum, Maurine, had battled with mental health issues. She had bipolar disorder, anxiety and depression and until her late forties was an alcoholic.
My husband was diagnosed 4 years ago with Alzheimer’s as a result of my noticing speech repetition patterns developing over a period of a few months. There are some excellent services available to people suffering from this dreadful disease but I feel that there are some areas which need addressing urgently especially in the light of the burgeoning number of cases diagnosed each year.
Michael grew up in the South-West of England, living in the fishing villages of Cornwall and Devon.
He enjoyed an active outdoor life.
A natural ability in art took him to art college, which was then interrupted by his conscription to the British Air-Force, where he was chosen to be a Fitness Instructor. From there he was recruited to be trained in the newly developed Diploma in Remedial Gymnastics, to help rehabilitate severely disabled ex-servicemen.
“I am a good Catholic girl” she said, as a matter of fact. “I will not have sex till I’m married” reputation secure and intact
My presence beside her the trigger I was in her room late at night, and because of her Catholic upbringing to her, it just didn’t seem right
As I help care for this lady Alzheimer's is taking control, her memory is losing the data she still is a beautiful soul
For me, Younger Onset Dementia first raised its ugly head in the 1980s when my husband was diagnosed with Fronto Temporal Dementia. He was 52 and died at 66 in 1999.
Four years later my daughter Lisa, then 43, was diagnosed with the same type of dementia. She had become difficult to live with and had separated from her husband and was living with her daughter aged 15 and son 12. Her driving was erratic and she eventually had a driving accident and I found out there was no insurance when I received a bill for $12,500 from the other party’s insurance company.
I write this on behalf of my son whose wife Jodie developed Dementia/Alzheimer’s in her late 40’s after being told her symptoms were menopausal.
Sadly pathology, brain scans and a battery of other testing proved otherwise and we set out on a road thwart with obstacles, joy, discovery, wonder, puzzlement, unbelievable sadness and a whole new learning for all concerned.