Stories

The stories on these pages are from people affected by dementia.

Click here to tell us your story.

 

My Greatest Sadness.

I have found myself, at the age of 62
In a place that I never thought I’d be
I have a husband, children, and grandchildren. Let me tell you a little about me……

My mind is in a fog, my days seem empty
No longer can I work – the future seems bleak My memory is going, and anxiety now haunts me Every day it’s just normality that I seek

First signs

My name is Wendy and I am 54 years old. Prior to my diagnosis (which was 3 years ago) I was working full-time as a Payroll Officer and I was a sole parent with my 22 year old daughter living at home.

It was in my work place that I first noticed something was not right. I had been in Payroll for 18 years and couldn’t remember how to do back pay or remember the meetings that I had attended. So after becoming quite concerned about what was going on at work I went to my GP of several years. 

My mum’s story is a tragic one, although there was a silver lining in the end.

Since I was 9 (I am currently 45) my mum, Maurine, had battled with mental health issues. She had bipolar disorder, anxiety and depression and until her late forties was an alcoholic.

33 years ago my Mother was diagnosed with Dementia.

The Doctor told my Father and me that Dementia meant Mum's brain cells were dying, and nothing could be done.

She would soon be institutionalised in Kenmore Mental Asylum - a very old, lock-up facility. This left us feeling helpless, hopeless and broken-hearted over what was happening.

The illness progressed as expected, with Mum "living" her last 4 years in Kenmore, not recognising me, not talking, and cared for by people who were not able to help us connect in any way.

Where Or Who Do You Go To When You No Longer Have The Strength To Be A Carer - What Do You Do?

I have tried so very, very hard to keep my husband, with Alzheimer’s, at home for as long as possible, and not place him in a Nursing Home. 

My husband was diagnosed 4 years ago with Alzheimer’s as a result of my noticing speech repetition patterns developing over a period of a few months. There are some excellent services available to people suffering from this dreadful disease but I feel that there are some areas which need addressing urgently especially in the light of the burgeoning number of cases diagnosed each year.

Michael grew up in the South-West of England, living in the fishing villages of Cornwall and Devon. 

He enjoyed an active outdoor life.

A natural ability in art took him to art college, which was then interrupted by his conscription to the British Air-Force, where he was chosen to be a Fitness Instructor. From there he was recruited to be trained in the newly developed Diploma in Remedial Gymnastics, to help rehabilitate severely disabled ex-servicemen.

Diagnosis:
Grace Edwards was born 4/2/1927, she was diagnosed with dementia at Casey Hospital October 2007 after an operation at Dandenong Hospital to remove gallstones, gallbladder and repair a hernia. It was previously a gradual diminution of memory over several years. She was medicated for low level depression.

Stage1:
On recommendation of our doctor we received 1 hour/ week home help and 1 hour/week social visit.

Stage 2:
Upgraded to Villa Maria early 2007

MY DAD

The old man sits there, Looking like he used to

A man drowsy from sleep, With a smile so deep.

Who is this man? Once so full of life

Now silent and withdrawn, Unaware of life with his wife.

Who is this man? That sits quietly in his chair?

With a twinkle in his eye, Reminding me with his stare.

Who is this man? Who used to sit me on his knee,

And called me “Blossom” But now no longer knows me.

This old man is my Dad, He is not the man I once knew

My partner Chris was diagnosed at age 56 with Younger Onset Dementia.

Prior to his diagnosis he was a successful and articulate teacher. However, when his employer recognised that something was wrong and suggested that he see his doctor, our lives changed dramatically.