Stories

The stories on these pages are from people affected by dementia.

Click here to tell us your story.

 

She once was Australia’s “First Lady” exuding her poise style and grace, exceeding her roles expectations her aura protecting her space Her gift of relating to people to empathize, one of her skills, a sharp witty mind educated her role as a mother fulfilled 

Then cruelly and randomly chosen Alzheimer invaded her mind, how could this happen to Hazel? who surely is one of a kind It strikes without fear, without favour and victims are somewhat perplexed they can’t understand what is happening or where this will all lead to next 

First signs

n 2000 I noticed changes in my husband, Keith’s behaviour when he was in his late 60’s. He had always attended to financial and household needs and was a metal and woodwork hobbyist. Regarding finances, he said “We’ll just leave the papers now” and his workshop was now in chaos. 

Tom

I befriended a loving person some 30 years ago. We got on great together and enjoyed travelling around Australia.

Then in 2000, Margaret started not been able to remember things. Not able to do what she use to. Then it would come back to her.

She was changing and she realised it.

We went to the doctors. He suggested to have some tests. They did not go the way we would have liked (Alzheimer’s very possible).

Fay

Vascular dementia is a dementia that occurs because of mini and/or major strokes damaging the brain.  It is an insidious disease that steals capabilities, memory and personality. 

Over the last years, it crept up on my husband, Bill, like the proverbial thief in the night and I am writing his story, not only for the sake of our family history, or for the information of the wider community but because, when I researched the word dementia nobody told me exactly how it would be for Bill and me. 

My nan suffered from dementia for almost ten years.

She passed away last week in a nursing home.

I was her carer for two years before this and although it was very hard at times, I wouldn't change it for a thing.

My nan was always looking out for everyone, always there to share a joke, or laugh with.

I will miss her more than anyone can imagine.

There is nothing worse than seeing the one you love lose her memory and fade away infront of your eyes.

I knew Izaac for 13 years. We met when I was 63 and he was 69. From that day there was a bond between us. In later years Zac said that it was providential that we met when we did, and that was when the seed of love was planted, which slowly grew, blossomed and continued to flourish.

I help her change her panty pad, shampoo and brush her hair, her dentures soaking out of sight while I provide this care 

There are photographs of loved ones sitting neatly on the shelves, provided by her family to remind her of themselves

 

For she has got dementia what she once knew has gone, things that once were dear to her mean nothing - time moves on

MY MOTHER MY CHILD

The meadows were purring in tune with my mind, occupied in recognising the perfumes of the night. How alive was I!

The sun finally bowed into the sky on fire, my body crouched under a tea-tree, a tear of joy tickled my nose- “ I exist” I cried out.” Today I am free. A bright new day." In the distance, the humming of the ocean.

My mother has been diagnosed with Advanced Alzheimer's which seems to have a hereditary pre-disposition, 2 of her 3 sisters have also been diagnosed. 

Everyday l watch her regressing from us, her family and so l write :

 WHY DO I CRY, I CRY BECAUSE :

-  I see my mothers mind regressing, she forgets things and people, loses things, hides things, repeats herself, gets frustrated and angry, dresses inappropriately, doesn’t seem to listen.

- her deterioration is happening so quickly.

“I am a good Catholic girl” she said, as a matter of fact. “I will not have sex till I’m married” reputation secure and intact

 My presence beside her the trigger I was in her room late at night, and because of her Catholic upbringing to her, it just didn’t seem right

As I help care for this lady Alzheimer's is taking control, her memory is losing the data she still is a beautiful soul