Stories

The stories on these pages are from people affected by dementia.

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I went through the public system having blood tests, bone marrow biopsies, psychological tests, cat scans and MRI tests. They all came back negative. The doctors said they couldn't find out what was wrong with me. It was only that we pushed for a SPECT test that finally showed the severe damage in my brain that was causing the dementia.

It has been 9 years since my father had a heart transplant giving him a new lease of life and allowing us to have him with us for much longer.

Unfortunately, the drugs that suppress my father’s immune system cause him to frequently develop skin cancers even though he never ventures into the sun.  He is, in fact, currently undergoing radiotherapy for a deadly melanoma known for its prevalence to those with suppressed immune systems.

What makes the side effects of his medication more challenging is the fact that he has vascular dementia.

I often talk with relatives of residents who believe that their loved ones are being given antipsychotic medication inappropriately, often with dreadful side effects. 

My wife has dementia and is going well down hill.

It has been about 3 years since she was diagnosed. It was delivered when I went to hospital to have a hip replaced. When I came out, she didn’t want to know me. She was put in to a home at Mirboo.

Life would be a lot easier if there was more help for people in my case. This has changed my life in the way I have to cook and look after her. My social life has been affected too, no golf etc.

Hi everyone,

I was lucky to be the winner of the Fight Dementia, Priceline gift box for my wife!

A big thank you to everyone involved.

I'm 42, and was in the last month finally diagnosed with Lewy Body Dementia.

Myself and my wonderful wife have spent the last 3 years in the public system that still to this day hasn't given me a diagnosis. They said I have some sort of Dementia but couldn't give an exact diagnosis. They had me on the waiting list to see a Neurosurgeon.

I knew there was something wrong with me approximately 2½  years ago. I was becoming very forgetful, my husband , who has always had a short fuse, would say loudly to me when I repeated myself “I have already told you that.” Of course this would upset me greatly but after time he stopped saying it.

I have eight grandchildren aged from 6 to 19 who I love to bits.  They understand much better than adults. It’s been an emotional roller coaster ride for me.

My beloved Dad (country Victoria) was forced into aged care for 6.5 years by my sibling (Adelaide), who didn’t want him living with us in a loving family unit.

We had an incredible amount of contact with him, and supported him in every way, took him on outings regularly, bought him to the family home weekly for special roasts, and treated him with dignity at all times.

He felt special and loved.

For 20 years we NEVER missed a birthday, father’s day or Christmas etc. No different in aged Care. He was a lucky one.

Prior to 2007, we led a normal lifestyle for our age (82).

My husband was diagnosed mainly by our own GP. Almost immediately he had to give up driving and our life changed quickly on account of this and other leisure activities.

Depending on our 2 daughters (both live great distances away) and relying on friends wasn’t good.

My husband’s dementia has progressed slowly over the past 4 years.

My Grandfather is 86 yo & my Grandmother is 83 yo, both happily married and have been so for about 63 years.

Old Gramps has prostate cancer & poor Grandma has Alzheimer’s Disease.

For this reason we are unable to put them into full time care, because Gramps has a physically debilitating disease & Grandma’s is a mental disease, they have different needs.

 A TEACHER REGARDLESS

A teacher at a Primary School with highly skilled awareness

Before he met Alzheimer life is questioned for it’s fairness,

His quest for gaining knowledge then imparting what he’d learned,

Was taken from his memory his skills were overturned

Sadly though within that mind that has become fragmented

Snippets of a learned skill align, then are presented

It doesn’t come with reason nor reflected comprehension