Stories

The stories on these pages are from people affected by dementia.

Click here to tell us your story.

 

I knew Izaac for 13 years. We met when I was 63 and he was 69. From that day there was a bond between us. In later years Zac said that it was providential that we met when we did, and that was when the seed of love was planted, which slowly grew, blossomed and continued to flourish.

My mother has been diagnosed with Advanced Alzheimer's which seems to have a hereditary pre-disposition, 2 of her 3 sisters have also been diagnosed. 

Everyday l watch her regressing from us, her family and so l write :

 WHY DO I CRY, I CRY BECAUSE :

-  I see my mothers mind regressing, she forgets things and people, loses things, hides things, repeats herself, gets frustrated and angry, dresses inappropriately, doesn’t seem to listen.

- her deterioration is happening so quickly.

I help her change her panty pad, shampoo and brush her hair, her dentures soaking out of sight while I provide this care 

There are photographs of loved ones sitting neatly on the shelves, provided by her family to remind her of themselves

 

For she has got dementia what she once knew has gone, things that once were dear to her mean nothing - time moves on

MY MOTHER MY CHILD

The meadows were purring in tune with my mind, occupied in recognising the perfumes of the night. How alive was I!

The sun finally bowed into the sky on fire, my body crouched under a tea-tree, a tear of joy tickled my nose- “ I exist” I cried out.” Today I am free. A bright new day." In the distance, the humming of the ocean.

“I am a good Catholic girl” she said, as a matter of fact. “I will not have sex till I’m married” reputation secure and intact

 My presence beside her the trigger I was in her room late at night, and because of her Catholic upbringing to her, it just didn’t seem right

As I help care for this lady Alzheimer's is taking control, her memory is losing the data she still is a beautiful soul

For me, Younger Onset Dementia first raised its ugly head in the 1980s when my husband was diagnosed with Fronto Temporal Dementia. He was 52 and died at 66 in 1999.

Four years later my daughter Lisa, then 43, was diagnosed with the same type of dementia. She had become difficult to live with and had separated from her husband and was living with her daughter aged 15 and son 12.  Her driving was erratic and she eventually had a driving accident and I found out there was no insurance when I received a bill for $12,500 from the other party’s insurance company.

Dot

I write this on behalf of my son whose wife Jodie developed Dementia/Alzheimer’s in her late 40’s after being told her symptoms were menopausal.

Sadly pathology, brain scans and a battery of other testing proved otherwise and we set out on a road thwart with obstacles, joy, discovery, wonder, puzzlement, unbelievable sadness and a whole new learning for all concerned.

Frangipani

There are bangles on her forearms she has rings on every finger, a frangipani in her hair the fragrance will not linger.

Leo

I was diagnosed with dementia by a psych-geriatrician in Hobart in April of 2008; my diagnosis was dementia probable Alzheimer’s.

She based this diagnosis on my test scores previously given to me by a Neuro-psychologist, the Mini-Mental and other dementia tests. She started me on Aricept that day. I continue to see her on a regular (every 6 months) basis. At those visits, she evaluates any progression of the disease.

My mother’s name was Ruth Hawkins and we finally celebrated her passing February this year.

We watched Ruth battle dementia for over ten years. Ten years ago support, assistance, knowledge was at a minimum and difficult to co ordinate for someone who did not want to accept their fate.