Further reading and resources


Websites and links


  • An unexpected journey : Living with Alzheimer's disease [Video], a presentation by Philip Alderton diagnosed with Alzheimer's disease at the age of 61 / Alzheimer's Association (S.A.) Inc. -- Glenside, SA: Alzheimer's Association South Australia, 1998.
  • Early onset memory loss: A conversation with Letty Tennis [Video], Joseph & Kathleen Bryan Alzheimer's Disease Research Centre
  • My challenge with Alzheimer's disease [Video], South Melbourne, Vic. Educational Media Australia, 1996. 


  • Alzheimer's Association USA Early onset dementia: A national challenge, a future crisisChicago, IL, Alzheimer's Association, 2006.
  • Alzheimer's Association Australia The young mind: Issues in relation to young people and dementia, Sydney, NSW: Alzheimer's Association Australia, 1994.
  • Baldwin, Robert and Michelle Murray (eds) Younger people with dementia: A multidisciplinary approach, London, UK: Martin Dunitz, 2003.
  • Boden, Christine, Who will I be when I die? HarperCollins, 1998.
  • Bryden, Christine, Dancing with dementia, Jessica Kingsley, 2005.
  • Cox, Sylvia; Keady, John. Younger people with dementia: planning, practice and development,Jessica Kingsley, 1999.
  • Cox, Sylvia; McLennan, Jane M, A guide to early onset Dementia, Stirling, Scotland: Dementia Services Development Centre, 1994.
  • DeBaggio, Thomas, Losing my mind : An intimate look at life with Alzheimer's, New York, NY: Free Press, 2002.
  • Imperial College of Science and Medicine, Young onset dementia : epidemiology, clinical symptoms, family burden, support and outcome, North Thames: NHS Executive, 1998.
  • Radin, Lisa & Gary Radin, What If it's Not Alzheimer's? A Caregivers Guide to Dementia, Prometheus Books, 2003.
  • Valenta, Tom. Remember Me, Mrs V?, Hill of Content Publishing Co Pty Ltd, 2007.
  • The carer experience: Information and ideas for carers of people with dementia, Australian Government Publishing Service, ACT.


  • HACC Service Models for People with Younger Onset Dementia & People with Dementia and Behaviours of Concern: Issues for Aboriginal and Torres Strait Islander People and People from Culturally and Linguistically Diverse Backgrounds - Final Report, February 2008
  • Appropriate HACC Service Models for People with Younger Onset Dementia & People with Dementia and Behaviours of Concern - Final Report, February 2007

Journal articles

  • Challenges and charms: Supporting younger people with dementia in Oxfordshire, Signpost: to older people and mental health matters, Vol. 8(1) June 2003, p.5
  • Course and causes of suspected dementia in young adults: A longitudinal study, Panegyres, Peter K.; Frenchman, Kate. -- Thousand Oaks, CA: Sage. American journal of Alzheimer's disease & other dementias, Vol. 22(1) Feb/Mar 2007, p 48
  • Developing better services for young onset dementia, Journal of Dementia Care, Vol. 12(1). Jan/Feb 2004, p.16
  • Dream catcher: A native American meditation practice, Francis, Ryan; DeVoid, Nicole; Richeson, Nancy E. Activities Directors’ Quarterly, Vol. 8(3) Summer 2007 p. 42-46
  • Early-onset Alzheimer's disease: When is genetic testing appropriate?, Alzheimer disease and associated disorders, Vol. 18(2) Apr/Jun 2004 p.65-67
  • Early-Onset Alzheimer Disease in an Italian Family With Presenilin-1 Double Mutation E318G and G394V, Batelli, Sara [et al]. Alzheimer Disease & Associated Disorders. 22(2): Apr/Jun 2008, p.184-187.
  • Evaluation of an early onset dementia service, Journal of Dementia Care , Vol. 12(1) Jan/Feb 2004 p. 35
  • Integrated care pathways for young onset dementia, Journal of Dementia Care, Vol. 12(2) Mar/Apr 2004, p.29
  • Living a quality life with dementia, Dyck, Phyllis. Alzheimer’s Care Today, Vol.8(4) Oct-Dec 2007 p. 301-303
  • Providing person-centred care for younger people with dementia, Journal of Dementia Care, Vol. 12(1) Jan/Feb 2004, p.18
  • What users and carers think of a service for younger people, Journal of Dementia Care, Vol. 12(1) Jan/Feb 2004, p.38
  • Younger people with dementia: The challenge, Signpost : to older people and mental health matters, Vol. 8(1) Jun 2003, p.12