Lived experience driving force for change

Dementia Australia recognises that consumers are experts in lived experience.

The involvement of people living with dementia and those caring for, or supporting people with dementia is the driving force behind Dementia Australia’s work.  National Consumer Network

Dementia Australia’s National Dementia Consumer Network was established in May 2016. It is a broad and inclusive network for people with dementia, their families or support person, and current or past informal carers.  

Membership of the network is open to all consumers from across the country of all ages and backgrounds. 

Consumers in the network share their personal stories and experiences with Dementia Australia to help drive change and achieve important outcomes. There are many opportunities for consumers to contribute which may include:

  • Sharing stories for Dementia Australia’s campaigns and projects
  • Media interviews and presentations
  • Participating in consumer summits, workshops and forums
  • Providing feedback on Dementia Australia’s policy work, including submissions to national inquiries
  • Reviewing consumer information and publications
  • Involvement in research activities
  • Setting priorities in Dementia Australia’s advocacy and research work
  • Participating in high-level advisory groups or steering committees
  • Mentoring other consumer advocates

Network members can connect, gain knowledge and learn new skills through involvement in working groups and projects, participation in consumer summits and workshops, and by mentoring others.  

Network members can contribute to Dementia Australia’s work by email, teleconference, webinars or at face-to-face events.

Dementia Australia welcomes and encourages the involvement of members from diverse backgrounds and special needs groups including Aboriginal and Torres Strait Islander people, people from culturally and linguistically diverse backgrounds, people with younger onset dementia, people in rural and remote areas, people at risk of homelessness, people who identify as lesbian, gay, bisexual, transgender and/or intersex, and people with dementia who live alone. 

People with dementia who wish to participate but who need additional support to do so, will be provided with appropriate support.

You do not need any prior experience to join the network, only a willingness to help improve the quality of life for people with dementia, families and carers.  

You do not need to be a user of Dementia Australia’s services to join the network.

Want to get involved?
Contact Dewi-Inala Zulkefli at Dementia Australia on (03) 9816 5780 or email to discuss your experience, areas of interest and preferred activities. 

Dementia Australia will send you a monthly email outlining consumer engagement opportunities and updates. You are free to choose your own level of involvement, you can participate as much, or as little, as you like. You can step down from activities, or unsubscribe from the monthly email at any time. You can join the network, or re-join, at any time.