Better outcomes for people with younger onset dementia and the NDIS

Dementia Australia working to ensure better outcomes for people with younger onset dementia during the roll out of the National Disability Insurance Scheme.

The National Disability Insurance Scheme (NDIS) continues to roll out across Australia with the Central Highlands in Victoria and Toowoomba and the Darling Downs in Queensland only recently becoming active NDIS areas. With the NDIS rolling out to more areas later this year and into the future the Younger Onset Dementia Key Worker (YODKW) Program is working hard to support people with younger onset dementia as they prepare for their NDIS planning sessions where their NDIS individually funded plans are developed. 

Younger Onset Dementia Key Workers have helped over 100 people with younger onset dementia prepare for their NDIS planning sessions to date and are providing a range of NDIS funded supports to existing YODKW Program clients and new participants. 

Dementia Australia has also been in attendance at a number of National Disability Insurance Agency (NDIA) consultations and advocated for people with younger onset dementia at the Australian Human Rights Commission’s discussion on disability rights and other consultations. Dementia Australia will also be launching a joint position statement with the Neurological Alliance of Australia (NAA) highlighting the specific needs of people with a progressive neurodegenerative disease in the NDIS and making recommendations on how to address these unique needs.

Dementia Australia remains committed to ensuring people with younger onset dementia benefit from the NDIS as so many other Australians have as it rolls out across the country.

If you have a diagnosis of younger onset dementia, a younger onset dementia key worker can help you, your family or carer in a number of ways.

If you are an existing Younger Onset Dementia Key Worker Program participant contact your younger onset dementia key worker to learn more. If you are not currently participating in the program, the best way to access the Younger Onset Dementia Key Worker Program is to call the National Dementia Helpline on 1800 100 500. 

For more information please visit the Dementia Australia website.