Consumer input and feedback

Dementia Australia values consumer input and feedback. There are a number of opportunities for consumers to get involved in a range of Dementia Australia activities.

Be The Change 2017 at the Dementia Australia National Dementia Conference

The 17th Dementia Australia Biennial National Dementia Conference will be held in Melbourne from the 17th to the 20th of October.

Delegates are being called upon to ‘be the change’ that improves the quality-of-life and support of all people living with dementia, their families and carers.

Abstracts are now open so if you’d like to ‘be the change’ visit the conference website

Calling all carers of people with dementia

You are invited to enrol in a FREE online program that may assist you to:

  • Work towards your personal goals
  • Learn more about respite services and strategies
  • Understand and navigate the respite services system

The program is part of a University of Wollongong research project exploring the most effective way to provide education and support for carers of people living with dementia.

For more information visit rethink respite or contact Dr Liz Cridland or phone: (02) 4221 4226. 

Dementia in the public domain study – what are your views on dementia?

Researchers at the University of Melbourne want to find out how people form their opinions about dementia and what they consider to be effective campaigning to increase understanding about and empathy for people living with dementia and those who provide support.

The aim of the study is to examine current public perceptions of dementia from a range of perspectives, including those of key professional and consumer groups and aim to provide guidance for future public campaigning to foster greater understanding about and empathy toward people living with dementia and their carers.

They are interested to hear your personal views and opinions and would like to interview people living with dementia or family and people providing support. 

Interviews will be conducted over the phone and take about 30-60 minutes.

Please contact Leanne O’Neill or phone 02 6278 8909 to register your interest. The researchers are offering a $40 gift voucher will be offered as a small token of appreciation, and you will receive a summary of the results.

“Dementia in the Public Domain: Attitudes and Interventions” is approved by the University of Melbourne Human Research Ethics Committee (No. 1647136).

Share a personal hospital story and help others 

Dementia Australia is supporting a campaign that aims to make hospitals safer and less confusing places for people with dementia.  The Australian Commission on Safety and Quality in Health Care’s (ACSQHC) Caring for Cognitive Impairment Campaign recognises that people with dementia or delirium (common conditions of cognitive impairment) are at significantly higher risk of preventable adverse events such as falls, pressure injuries, longer stays and even death, while in hospital.

The campaign is inviting people to share their stories to help improve the experience of others in hospital. This can be a simple paragraph or a more detailed story of up to a page (400 words maximum). Stories can be about the whole hospital experience or focus on a particular aspect.

Contact the campaign team to share your hospital experience.

Participate in research - new studies listed on the Dementia Australia Dementia Research Foundation (AADRF) website.

Successful research relies on the involvement of people living with a diagnosis of dementia, their carers, support person and the general public. By participating in research you can contribute toward finding a cause, treatment or cure for this disease, assist the evaluation of innovative prevention strategies and improve dementia care.

Participating in dementia research can be a rewarding experience. If you would like to see what studies are available in your area, please visit the AADRF website.

Do you care for a family member with dementia? 

If you are a family carer of a person living with dementia in the community you are invited to take part in a national survey about day centre respite care and your needs.

The survey is called “What is ‘A Good Day Out’? Working Towards Optimal Day Centre Respite Care and Ways to Measure It” and is being funded by the Dementia Collaborative Research Centre: Carers and Consumers at the Queensland University of Technology (QUT).

The DCRC and QUT want to hear your experiences and opinions. You do not need to have used respite services to take the survey. 

The survey can be taken online or by telephone. Take part in the survey or for more information contact Katy Wyles or phone (07) 3138 3852. 

Have you considered joining the network?

There are many more opportunities for consumer involvement in Dementia Australia activities and as people living with dementia or caring for someone with dementia, you really are the lived experience capable of driving change.

We look forward to working closely with you.

If you would like to join the Dementia Australia National Dementia Consumer Network please contact Leanne O'Neill or phone (02) 6278 8909.

Membership of the network is open to all consumers from across the country of all ages and backgrounds. You can participate as much, or as little as you like.