Dementia Australia values consumer input and feedback. There are a number of opportunities for consumers to get involved in a range of Dementia Australia activities.
Congratulations Glenda and Bronte
Dementia Australia would like to congratulate Glenda and Bronte Parkin from Western Australia who received a 2017 Aged & Community Services Australia (ACSA) Excellence in Care Awards WA - Volunteer Award.
The Dementia Australia Dementia Advisory Group (AADAC) Alumni members received the award, sponsored by Braemar Presbyterian Care, at the awards ceremony in Western Australia on 9 June.
The annual awards were an important opportunity to celebrate excellence across the non-profit aged and community care industry – a big congratulations to Glenda and Bronte!
National Aged Care Quality Regulatory Processes Review
The Commonwealth Government has initiated a review of National Aged Care Quality Regulatory Processes.
The review will examine and report on Commonwealth regulatory practices relating to monitoring the quality and standard of care in residential aged care facilities.
The review is inviting submissions from aged care residents, their families, carers and other interested people by 24 July 2017. Dementia Australia will be submitting to this review.
For more information or participate in the review visit the government website.
My Aged Care Capability Development Project
The Department of Health has engaged CIT Solutions to conduct a national project to identify the way people can better interact with and use the My Aged Care system.
The project will:
- Identify the capability of the My Aged Care staff to support the operation of My Aged Care (website and phone line)
- Pinpoint the priority areas to further improve the My Aged Care experience for consumers
- Shape learning opportunities to enhance personal capability
The Department of Health is seeking input from:
- Service providers
- Health Professionals
- Peak bodies
National Safety and Quality Health Service (NSQHS) Standards (second edition)
The Australian Commission on Safety and Quality in Health Care (the Commission) is seeking feedback on the draft resources to support the National Safety and Quality Health Service (NSQHS) Standards (second edition).
The resources aim to assist health service organisations to implement and prepare for assessment to the NSQHS Standards (second edition).
Consultation commenced 22 May for the NSQHS Standards user guide for Aboriginal and Torres Strait Islander health and closes on 31 July 2017.
You can find consultation questions and instructions for submitting a response online or by email, mail or fax here.
There is a survey to provide feedback.
The launch of the NSQHS Standards (second edition) and the finalised supporting resources is planned for November 2017, with assessment to the NSQHS Standards (second edition) to commence from 1 January 2019. Questions regarding the public consultation on these resources can be made to the Commission on 1800 304 056 or emailed .
Dementia Awareness Month
As part of our preparations for Dementia Awareness Month in September, we'd like to explore attitudes and beliefs surrounding dementia, and compare them across the population - but we need your help.
We've created a short, 10 minute survey which can be taken by people with dementia, their carers and members of the general public.
The information you provide will assist us to not only research and present the findings but raise awareness and change attitudes. The survey is anonymous. We'd love as many responses as possible so we get a really thorough picture, so please share it far and wide.
We’ve received some fantastic responses already – so thank you if you have already completed the survey, we’re a bit short on opinions from men. If you know of any men who would like to complete the survey, please share with them this link.
Please complete all responses by 10 July 2017.
Be The Change 2017 at the Dementia Australia National Dementia Conference
The 17th Dementia Australia Biennial National Dementia Conference will be held in Melbourne from the 17th to the 20th of October.
An exceptional line-up of National and International Keynote Speakers has just been announced and Dementia Australia is inviting you to join us and ‘Be the Change’.
The biennial event brings together a diverse range of voices and expertise with an interest in dementia and showcase fantastic work that is being done to improve the quality-of-life and support of all people living with dementia, their families and carers.
If you’d like to join us and ‘Be the Change’ visit the conference website.
Randomised trial to improve the quality of life in people with dementia plus their carers (RAPID-Plus)
The University of Melbourne Academic Unit for Psychiatry of Old Age (AUPOA) is looking for volunteers to join the RAPID-plus trial, a study testing a new approach to treating depressive symptoms in people with Alzheimer’s disease and their carers.
This six-month study aims to test a novel intervention designed to improve the mood and quality of life of people with memory concerns and those who care for them. The intervention is called ‘cognitive bias modification’ or CBM.
CBM is an easy to use computer-based intervention that aims to break the vicious cycle of negative thoughts contributing to negative feelings.
People who answer ‘yes’ to the following may be eligible to join the RAPID-plus trial:
- Have you been diagnosed with mild to moderate Alzheimer’s disease and have some depressive symptoms?
- Are you a carer for someone with mild to moderate Alzheimer’s disease?
- Are you fluent in written and spoken English?
If you, or someone you know would be interested in participating, or for more information, please contact Rhoda Lai at AUPOA by phone (03) 8387 2202 or email or visit the AUPOA website. Recruitment closes 31 July 2017.
Healthy Brain Project – Australian first study of Psychological, Lifestyle and Genetic Factors the Increase Risk of Alzheimer's Disease
This study looks to track the cognitive, lifestyle and psychological markers of 4000-5000 community-based middle-aged adults (40-65 years inclusive) over five years online, in relation to genetic risk factors that are shown to increase risk of Alzheimer’s disease dementia in older adults.
This is a five year study. Participation in this study will involve yearly online assessment of cognitive function, and surveys pertaining to psychological health, lifestyle, medical health and family history. Saliva sampling kits will be mailed to participants (this will only occur once in this study).
For further information or to learn more about this study please visit The Healthy Brain Project's website.
If you'd like to speak with a member of the research team, please call 0477 890 908, or email.
This study is approved by the Royal Melbourne Hospital Human Research Ethics Committee (2016.199).
Participate in research - new studies listed on the Dementia Australia Dementia Research Foundation (AADRF) website.
Successful research relies on the involvement of people living with a diagnosis of dementia, their carers, support person and the general public. By participating in research you can contribute toward finding a cause, treatment or cure for this disease, assist the evaluation of innovative prevention strategies and improve dementia care.
If you would like to see other studies are available in your area, please visit the AADRF website.
Have you considered joining the network?
There are many more opportunities for consumer involvement in Dementia Australia activities and as people living with dementia or caring for someone with dementia, you really are the lived experience capable of driving change.
We look forward to working closely with you.
If you would like to join the Dementia Australia National Dementia Consumer Network please contact Leanne O'Neill or phone (02) 6278 8909.
Membership of the network is open to all consumers from across the country of all ages and backgrounds. You can participate as much, or as little as you like.