Wednesday 16 March 2016
Action priorities for and by people with dementia and their care partners
Today more than 70 people living with dementia and their carers will present Parliamentarians with a Communique outlining the priorities they have identified need immediate action to improve dementia care in Australia. These action priorities are informed by their experiences and their knowledge of what would make a difference in their lives.
The Communique has been developed by consumers from across the country attending an intensive two-day National Consumer Summit at Parliament House in Canberra, to help shape the beginnings of a National Dementia Strategy.
Mike Bryan who was diagnosed with younger onset Alzheimer’s disease two years ago attended the Summit with his wife and carer Linda Bryan.
“It is important for consumers like me to be included in the Summit. Especially with a diagnosis of dementia, I have an important contribution to make to the discussion around the funding for dementia and the way in which we are supported by the Government and the Community. It’s about improving the future situation for people who have been diagnosed with dementia,” Mr Bryan said.
Mrs Bryan says it is critical that consumers are the drivers of future policy around dementia.
“I am pleased to be in a forum in which I have a real say in the issues that confront me as a carer. My hope is that the recommendations from this Summit will result in a workable and fully-funded model for dementia care that is truly consumer-directed,” Mrs Bryan said.
Consumers unanimously called for a funded National Dementia Strategy with measurable outcomes which builds on the National Framework for Action on Dementia 2015-2019 and addresses the following action priorities:
- Promote greater awareness and risk reduction
- Tackle the stigma and discrimination associated with dementia and support social inclusion and participation
- Improve access to timely diagnosis and high quality health care
- Provide care and support in the community that supports independence, social engagement and effective support for informal carers
- Ensure access to high quality residential care and publicly available information about consumer experience and quality of care
- Improve end of life care and support for people with dementia
- The implementation of Consumer Directed Care for people with dementia and their carers
- The commitment to increase investment in dementia research
Alzheimer’s Australia National President Professor Graeme Samuel AC said, “today our consumers have articulated a vision for dementia in Australia, on behalf of the other 353,000 people living with the condition across the country. It is important we take the unanimous voice of our consumers to the policy makers who influence legislation to improve the quality of life for all those living with dementia and their families and carers.”
Read the full Communique here.
Bianca Armytage | 0407 019 430 | firstname.lastname@example.org
Alzheimer’s Australia is the peak body representing people with dementia and their families and carers. It provides advocacy, support services, education and information. More than 353,800 people have dementia in Australia. This number is projected to reach more than half a million by 2030.
National Dementia Helpline: 1800 100 500
An interpreter service is available
(The National Dementia Helpline is an Australian Government Initiative)
Dementia is a National Health Priority Area
Media resources and additional information