People with dementia call for action on National Dementia Priorities

Media Release

Friday 11 March 2016

People with dementia call for action on National Dementia Priorities

More than 70 people living with dementia and their carers will come together in Canberra to identify key priorities and call on politicians to take action in responding to Australia’s growing dementia rates during a two-day Consumer Summit at Parliament House.

The consumers from across Australia will be representing the more than 353,800 Australians living with dementia when they speak directly with federal politicians, including the Health Minister, The Hon Sussan Ley MP, Assistant Health Minister, The Hon Ken Wyatt AM, MP, Parliamentary Friends of Dementia Co-Convenors The Hon Shane Neumann and The Hon Teresa Gambaro among other key politicians.

Diagnosed with younger onset frontotemporal dementia at age 49, Dementia Australia’s Dementia Advisory Committee Chair, Kate Swaffer recently became a member of the World Dementia Council and is Chair, CEO and co-founder of Dementia Alliance International.

Ms Swaffer said it was important people with dementia had a forum where they could voice the matters which are important them. 

“In order to effect meaningful change, people with dementia must be front-and-centre when it comes to the issues that affect us,” Ms Swaffer said.

“Forums like this, allow people with dementia to come together with our care partners to ensure that our voice is united and delivered straight to the people that matter - the policy and decision-makers, who can bring about action.”

Alzheimer’s Australia CEO Carol Bennett said the National Consumer Summit was an excellent opportunity for consumers to highlight their priorities about where improvements to care, treatment and policy could be made.

“It is really important for people with dementia to be heard and it is fantastic that we will have so many able to join us for this summit,” Ms Bennett said.

“As users of the health, aged and disability systems feedback from people living with dementia is invaluable. Any responses to dementia must reflect the views and experiences of people living with the condition.”

Media enquiries:

Bianca Armytage | 0407 019 430 | bianca.armytage@dementia.org.au


Alzheimer’s Australia is the peak body representing people with dementia and their families and carers. It provides advocacy, support services, education and information. More than 353,800 people have dementia in Australia. This number is projected to reach more than half a million by 2030.


National Dementia Helpline: 1800 100 500
An interpreter service is available
(The National Dementia Helpline is an Australian Government Initiative)
Dementia is a National Health Priority Area


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