When will the registry be up and running?
It will take at least a year for the registry to be up and running – possibly longer.
ADNeT research partners received the research grant on 1 July 2018 so now the work can begin. There is much development required to create a national database. The research to get agreement across the nation on a standard assessment of persons with memory complaints or dementia and what data we need to collect to measure quality of diagnosis and care. This will involve consultation with existing memory clinic staff, consumers and experts in memory testing, brain scans and electronic database creation and management, with appropriate attention to confidentiality and data security.