Numbered publications

Position papers, discussion papers and speaker presentations.

2021

A roadmap for quality dementia care
Parliamentary Friends of Dementia paper (March 2021)
 


2020

One day the support was gone…
The mental health impact of COVID-19 on people living with dementia, their families and carers
Discussion paper (November 2020)
 


2019

Dying Well - Improving palliative and end of life care for people with dementia | Federal
Discussion paper (November 2019)

Dying Well - Improving palliative and end of life care for people with dementia VIC
Discussion paper (October 2019)

Dying Well - Improving palliative and end of life care for people with dementia NSW
Discussion paper (November 2019)

Dying Well - Improving palliative and end of life care for people with dementia QLD
Discussion paper (November 2019)
 


2018

Palliative Care and dementia
Discussion paper number 43 (2018)
 


2017

Relationships and dementia
Discussion paper number 19 (June 2017)
 


2016

Driving and dementia
Discussion paper number 18 (November 2016)

Living well with dementia
Discussion paper number 17 (August 2016)

Younger onset dementia - Still falling through the cracks
Discussion paper number 16 (May 2016)

Football, head injuries and the risk of dementia
Discussion paper number 15 (February 2016)
 


2015

Caring for someone with dementia: the economic, social, and health impacts of caring and evidence based supports for carers
Paper number 42 (October 2015)

Dementia guide for the Australian Retirement Village Industry
Discussion paper (November 15)

Dementia in retirement villages
Discussion paper number 13 (August 2015)

Reducing the prevalence of Alzheimer's Disease; Modifiable risk factors or social determinants
Discussion Paper (April 15)
 


2014

The benefits of physical activity and exercise for people living with dementia
Discussion paper number 11 (November 2014)

Preventing financial abuse of people with dementia
Discussion paper number 10 (June 2014)

Dementia in prison
Discussion paper number 9 (March 2014)

Meeting the Transport Needs of People with Dementia (Nov 2014)
- Summary report (November 2014)
- Full report (November 2014)

Mobile Respite Team (Bega Valley Shire) - read the final evaluation report on the Mobile Respite team
Final evaluation report (January 2014)
 


2013

Dementia Care: Person-centred, palliative and supportive
Discussion paper number 35 (June 2013)

Wrestling with dementia and death
Discussion Paper number 34 (June 2013)

Respite review - Policy Paper
Policy paper number 33 (December 2012)

Dementia in Regional NSW
Discussion paper number 8 (November 2013)

Living alone with dementia
Discussion paper number 7 (June 2013)

Living alone with dementia
A guide for Service Providers (September 2013)

Football, head injuries and the risk of dementia
Paper number 6 (March 2013)
 


2012

Modelling the Impact of Interventions to Delay the Onset of Dementia in Australia
Paper number 30 (November 2012)

Targeting Brain, Body and Heart for cognitive health and dementia prevention
Paper number 29 (September 2012)

Exploring Dementia and Stigma Beliefs
Paper number 28 (June 2012)

Alzheimers Organisations as Agents of Change
Paper number 27 (April 2012)

Evaluation of NHMRC Data on the Funding of Dementia Research in Australia
Paper number 26 (March 2012)

The most difficult decision: Dementia and the move into residential aged care
Discussion paper number 5 (October 2012)

What prevents people with dementia making plans for their future?
Discussion paper number 4 (March 2012)
 


2011

National Strategies to Address Dementia
Paper number 25 (October 2011)

Timely Diagnosis of Dementia: Can we do better?
Paper number 24 (September 2011)

Building Dementia and Age-Friendly Neighbourhoods
Discussion paper number 3 (July 2011)

Planning for the End of Life for People with Dementia Part 2
Paper number 23 - part 2 (May 2011)

Planning for the End of Life for People with Dementia Part 1
Paper number 23 - part 1  (March 2011)
 


2010

Consumer involvement in dementia research: Dementia Australia’s Consumer Dementia Research Network
Paper number 22 (September 2010)

Media release - Australians affected by dementia to drive priorities in dementia services and research
(September 2010)

Addressing the Stigma associated with Dementia
Discussion paper number 2 (September 2010)

Towards a National dementia preventative health strategy - Full report
Paper number 21 (August 2010)

Media Release - Invest in preventative health to combat dementia epidemic

Ethical issues and decision-making in dementia care
Paper number 20 (June 2010)

Dementia: evolution or revolution
Paper number 19 (June 2010)

Driving and Dementia in New South Wales
Discussion paper number 1 (April 2010)
 


2009

Dementia: Facing the Epidemic - presentation by Professor Constantine Lyketsos at the National Press Club, Canberra
Paper number 18 (September 2009)

Respite care for people living with dementia: "It's more than just a short break"
Discussion paper number 17 (May 2009)

Letter to Justine Elliot MP, Minister for Ageing
(May 2009)
 

Quality Support Groups Research Project

Quality Support Groups Research Project - Phase 1
A report on dementia support groups in New South Wales (September 2005)

Quality Support Groups Research Project - Phase 2
A reporting on dementia support groups in New South Wales (February 2007)

Quality Support Groups Research Project - Phase 3 Executive Summary
Executive Summary (2009)
 


2008

Dementia risk reduction: What do Australians know?
Paper number 14 (September 2008)

Australian Dementia Research: current status, future directions?
Paper number 16 (June 2008)
 


2007

Dementia risk reduction : The evidence
Paper number 13 (September 2007)

Dementia: A major problem for indigenous people
Paper number 12 (August 2007)

Consumer-Directed Care: A way to empower consumers?
Paper number 11 (May 2007)

Early diagnosis of dementia
Paper number 10 (March 2007)
 


2006

100 Years of Alzheimer's Disease
(2006)

Decision making in advance
Discussion paper number 8 (May 2006)

Palliative care and dementia - Cover
Discussion paper number 7 (February 2006)

Palliative care and dementia - Discussion paper
Discussion paper number 7 (February 2006)
 


2005

Dementia : Can it be prevented?
- Paper number 6
This paper has been superseded by Paper No. 13 - Dementia risk reduction : The evidence.

Legal planning and dementia
Position paper number 5 (April 2005)
 


2004

Dementia care and the built environment
Position paper number 3 (June 2004)
 


2003

Quality Dementia Care
Position Paper number 2 (February 2003)
 


2001

Dementia : A major health problem for Australia
Position paper number 1 (September 2001)