HOPE, which stands for ‘Helping Other Possibilities Emerge’, is Dementia Australia’s newsletter for younger people with dementia.

Dementia Australia’s National Younger Onset Dementia Key Worker Program provides individualised information and support to improve the quality of life for people with younger onset dementia.

The best way to access the Younger Onset Dementia Key Worker Program is to call the National Dementia Helpline on 1800 100 500.

Since the last issue of HOPE, there has been nationwide coverage in print, radio and television of Dementia Australia’s Younger Onset Dementia National Awareness Campaign, ‘No Longer a Statistic’. This campaign was launched in mid‑2015, and gave us the opportunity to raise awareness of the unique challenges and needs of people with younger onset dementia. The campaign highlighted that a staggering 1 in 13 people with dementia are now under the age of 65, and that a number of these people are in their 30s and 40s.

No Longer a Statistic’ revealed that right now there are at least 25,100 people under the age of 65 with dementia, and by 2050 this will have jumped to 36,800. The campaign conveyed key messages about the importance and future of the program which currently helps people one-on-one with younger onset dementia.

Dementia is estimated to be costing Australia $6 billion in health care and lost productivity. Not only does this program provide better health outcomes through one‑on‑one specialist care, but it also makes good economic sense.

For some of those who access the program, they say it has been life changing, and one participant has described it as their lifeline. The campaign highlighted that this unique program needs to be carefully transitioned to the NDIS to ensure people can access the critical help they need, and Dementia Australia is continuing its dialogue with the Government about the transition.

National Key Worker Summit

The National Key Worker Summit was held in Melbourne earlier in the year as part of the Younger Onset Dementia Key Worker Program. The Summit brought together key workers, consumers, health professionals and Dementia Australia staff from around Australia to share their experiences working with younger onset dementia.

National Key Worker Summit

Our Stories: Hip Hop and Don’t Stop

Dementia Australia Victoria, the Gunditjmara community, Nathan Lovett-Murray, Winda Mara Aboriginal Corporation and Indigenous Hip Hop Projects have collaborated on the production of a hip hop music resource on dementia, wellbeing, culture and respect. A video that was produced by young indigenous artists wrote about the tough subject of dementia and the alarming prevalence rate in Aboriginal and Torres Strait Islander communities.

Watch the video in support of the project.

Quality Dementia Care Series 5: Younger Onset Dementia, A Practical Guide

People with younger onset dementia and their families require information on dementia and the variety of services and supports they can access. The Quality Dementia Care Series 5 (QDC5) is a practical guide for people with younger onset dementia, their carers and families, that includes suggestions and references to the supports currently available. Click here to read the document.

Superannuation and Dementia

Do you know your options regarding accessing your superannuation if you’ve been diagnosed with dementia? Click here to view the document.