Adult sons and daughters caring for a parent or parents living with dementia

Occurring Dates
to
Participant Duration
10-minute online survey and one-hour semi-structured interview.
State of study
All States
Overview

This study aims to better understand the carer experiences of adult sons and daughters supporting their parent/s living with dementia. Adult sons’ and daughters’ varied life circumstances, such as work obligations, educational level, other caring responsibilities, etc., may influence their respective caregiving experience. This knowledge can better inform psychologists and other health professionals and lead to further development of relevant counselling and psychoeducation for adult son and daughter carers. This is particularly important considering the growing number of people living with dementia in Australia and that adult children provide over half their informal care.

The research will collect information from adult son and daughter carers via an online survey and a semi-structured interview. Once a brief online survey has been completed, participants are redirected to a separate secure webpage where they can leave their contact details for the student researcher to contact them to organise a suitable time to conduct the semi-structured interview. The interviews will be recorded for the purposes of collecting accurate information.

We aim to recruit/interview a minimum of 35-40 participants aged 18+ years (i.e. 20 males and 20 females) who provide informal care to a parent/parents with dementia. Participants’ primary language will be English, they will be literate and have capacity to consent to participate in the research.

The research outcomes will be submitted to the School of Psychology at The University of Queensland in October 2021 and disseminated via publication and presentations. A brief overview of the study findings can be sent to participants when it is finished.

Please click or copy the link for further study information and consent and to participate in the online survey: https://uqpsych.qualtrics.com/jfe/form/SV_eu35CW0qn6uKHwG

Further information

The research is being conducted by Helen Borger as part of the completion of the Masters of Psychology in the Field of Counselling at The University of Queensland, under the supervision of Dr Theresa Scott, Lecturer in Clinical Geropsychology, School of Psychology, The University of Queensland.

This study has been cleared in accordance with the ethical review processes of The University of Queensland and within the guidelines of the National Statement on Ethical Conduct in Human Research (approval number 2021/HE000633). You are, of course, free to discuss your participation with project staff (contactable on: [email protected] or [email protected]). If you would like to speak to an officer of the University not involved in the study, you may contact The University of Queensland Ethics Office on (07) 3365 3924 or at e-mail: [email protected]

Study Address
The University of Queensland
St Lucia QLD 4072
Full Name
Helen Borger
Institute
The University of Queensland
Phone Number
0425 214 976