This is a two-phase project. Firstly, we’ll be distributing an online survey to people living with younger onset dementia and/or their families or care givers about their experience of service provision with the NDIS and the aged care sector. The information obtained from this questionnaire will then inform phase two, a translational research project, to improve collaboration between the disability and aged care sectors. This pilot implementation will have a focus on post-planning service delivery through the creation of collaborative care teams consisting of a Local Area Coordinator, disability service provider and aged care provider.
The survey is now available online and we invite all people with young onset dementia and/or supporters of people with young onset dementia to have their say by completing the online survey at: www.tinyurl.com/inspired-survey
This study has been approved by the approved by the Flinders University Social and Behavioural Research Ethics Committee, approval number 8331.