Dementia, Sleep and Wellbeing: A pilot trial to improve sleep and wellbeing in people living with dementia and their care partners

Occurring Dates
to
Participant Duration
10-12 weeks
State of study
All States
Overview

Sleep problems are common among people living with dementia and their care partners. Disturbed sleep is associated with a wide range of undesirable outcomes including fatigue, agitation, and cognitive dysfunction. Currently, accessible treatments to reduce sleep problems among people living with dementia and care partners are limited.

We have developed a six-week non-pharmacological sleep program aimed at improving sleep and mood in people living with dementia and primary care partners. The aims of the study are to:

  • Evaluate how feasible and useful the program is
  • Assess whether the program reduces sleep problems and improves mood, fatigue, and quality of life for people living with dementia and care partners.

What does the study involve?

  • Attending six sessions (up to 90 minutes) once a week via telehealth (Zoom) with a psychologist. During the sessions, you will receive practical strategies targeting sleep, mood, and fatigue. Sessions 1 and 4 will be personalised, one-on-one sessions with a psychologist. The other sessions will be offered in groups with other care partners and people living with dementia.
  • Completing a baseline questionnaire (we will send you a link) and completing a sleep diary and wearing an Actiwatch (wristwatch) continuously over two weeks before the sleep program begins. You will wear the Actiwatch again for two weeks in Week 5 and Week 6 of the sleep program and complete a sleep diary. You will be asked to complete follow up questionnaires at the end of the sleep program and an optional questionnaire at Week 10.

What are the study requirements?

Care partners and people living with dementia are eligible to participate in the study if:

  • One person is living with dementia
  • One person identifies as a care partner
  • Both participants are living together
  • Both participants report issues with their sleep
  • You have regular access to the internet, phone, and email
  • Both participants do not have untreated primary sleep disorders (e.g., sleep apnea, narcolepsy)
  • Both participants do not have untreated medical or physical conditions that directly and significantly affect sleep (e.g., emphysema, severe/chronic pain)
  • Care partners are not fixed night shift workers (between midnight – 5 am) or have rotating work schedules that require night-time work during participation
  • Care partners do not have self-reported diagnoses of schizophrenia, bipolar disorder, or post-traumatic disorder

Reimbursement

There will be no cost associated with participating in the study. You will be reimbursed with a $100 gift card at the end of the project to acknowledge your time and commitment to the study.

Participation details

For further information or to participate, please contact Aimee Brown at base.dementiasleep@monash.edu.
This project has been approved by the Monash University Human Research Ethics Committee (Project ID: 30710).

Study Address
Turner Institute for Brain and Mental Health, Monash University
Full Name
Aimee Brown
Institute
Turner Institute for Brain and Mental Health, Monash University
Email
base.dementiasleep@monash.edu
Phone Number
0413 906 588