Improving eye tests for people living with dementia

Occurring Dates
to
Participant Duration
Up to one hour one-off interview
State of study
All States
Overview

Having poor eyesight can make living with dementia harder. Regular eye tests are vital to detect and treat poor eyesight. If not adapted to accommodate their needs, eye tests can be challenging or distressing for people with dementia, and caregivers supporting them.

This research aims to improve the experience people with dementia have when receiving eyecare. It will make it easier to organise a dementia-friendly eye test, take part in the test and follow eyecare advice at home. Having good eyesight helps people with dementia maintain their independence, and live at home for longer.

We will speak with people living with dementia, family caregivers (both supported by a skilled interviewer) and eyecare professionals. This captures views of receiving, supporting and delivering an eye test. Findings from this research will help to design:

  1. Information cards about dementia-friendly eye tests and eyecare, for people with dementia and caregivers, available at dementia cafes and day centres.
  2. Training for eyecare professionals, about delivering dementia-friendly eyecare. This makes it easier to seek and receive dementia-friendly eyecare.

How many volunteers are we seeking?

20 people living with dementia and 20 carers. Interviews can be done together or separately as preferred by participants.

What do volunteers need to do?

Take part in an interview about eye tests that lasts no more than an hour. Breaks can be taken any time or the interview can be finished off another day. It is just an interview, not an eye test. No eye checks or eye drops will be used. Interviews can be by telephone, video call, or, if living in Victoria, in person at your home, at the University of Melbourne, or at a quiet place. A $100 shopping voucher will be offered to those who take part, if they have capacity to give informed consent. It is a one-off interview and there are no repeats or follow-ups. Travel expenses are reimbursed (if living in Victoria).

When will the interview happen?

Telephone and video call interviews can be done any time from when the study is registered. In person interviews will be scheduled based on current coronavirus restrictions and may be cancelled at short notice if restrictions change.

How do I know if I'm eligible to take part?

People living with dementia are eligible if they:

  • Have a confirmed diagnosis of any dementia type except frontotemporal dementia or posterior cortical atrophy
  • Are not receiving a blind persons pension or accessing low vision rehabilitation services
  • Reside at home
  • If without capacity: Have advanced care directive for research participation, or a nominated medical decision-maker who can be present.

People who are carers are eligible if they:

  • Have past or present experience of informal or family caring for someone with dementia who fulfilled the above eligibility criteria for people living with dementia.
Further information

For more information or to take part, please contact us. Give us a call on (03) 9349 7423, or send an email to eyetestresearch@gmail.com with your name and how we can get hold of you.

Information sheet for people living with dementia (Part 1 - Key facts): https://bit.ly/3A17CaI
Information sheet for people living with dementia (Part 2 - Further information for your records): https://bit.ly/3F5z7n1
Information sheet for family carers: https://bit.ly/3ojHPbm

The University of Melbourne Human Research Ethics Committee have approved this study (ID 2021-22234-21872-3). This research is funded by the Dementia Australia Research Foundation, and is carried out by the University of Melbourne and the National Vision Research Institute.

Study Address
Department of Optometry and Vision Sciences
200 Berkeley Street
Carlton 3053
University of Melbourne
VIC
Full Name
Marianne Coleman
Institute
University of Melbourne
Email
eyetestresearch@gmail.com
Phone Number
(03) 9349 7423