Self-management and HeAlth Promotion in early-stage dementia with E-learning for carers (SHAPE)

Occurring Dates
to
Participant Duration
If you are allocated to the intervention group, the group sessions will run online once a week for 10 weeks and each session will last up to 2 hours.
State of study
New South Wales
Overview

After receiving a diagnosis of dementia it is very important that individuals and families have access to support and advice at this time, to help people regain control, plan for the future and carry on living a life that is meaningful to them. This study aims to test a new online training and support group for people in the early stages of dementia and e-learning programme for care partners.

The research will involve the following: People with dementia will attend an online group once a week for 10 weeks and each session will last up to 2 hours. The group will consist of 4 participants with dementia and 2 group facilitators. Each group member will be given a ‘SHAPE iPad’, where they will be able to join the group online at the touch of a button!

The aim of the group is to support participants to develop skills in areas including:

  • Decision-making
  • Symptom management
  • Social interaction
  • Healthy habits
  • Adapting and coping

All participants (people with dementia and a chosen care partner) will also be required to attend 3 telephone or video-call meetings over the course of the 8 months. Like with a lot of research studies some participants will be randomised to the control group, which means they will not receive the group intervention from our research team. However, after the completion of the study, both participants and families can receive the e-learning course comprising of the educational material used in the group.

We are looking for people who:

  • Have a formal diagnosis of dementia
  • Are aged 65 and older
  • Have ability to read, write and communicate in English to a comfortable level
  • Have vision and hearing which allow them to engage comfortably in an online group setting
  • Have a care partner who is willing to dedicate a small amount of time to an e-learning program
Further information

For further information or to participate, please contact Jana Koch on (02) 9399 1116 or email [email protected] or visit NeuRA’s web page to fill out an expression of interest: https://www.neura.edu.au/project/shape/

The study has been approved by the UNSW Human Research Ethics Committee (HREC; Approval number: HC190440).

Full Name
Jana Koch
Institute
Neuroscience Research Australia
Phone Number
(02) 9399 1116