Get involved in research

Below is a list of current Australian researchers recruiting for participants. Please direct any queries about specific studies to the contact of the study.

You can search for a study by state or select All States for those studies which are national.

If you have any questions regarding content on this page or want to modify your study once submitted please email research@dementia.org.au

The Palliative Care Education and Training Collaborative at Queensland University of Technology is conducting research to establish a new capability framework that spells out the skills and attributes that healthcare providers need in palliative care. This research will allow us to update our current frameworks to ensure education of the future workforce is evidence-based and informed by the…

Participating states:
All States
Occurring dates:
to

Researchers at The University of Sydney and Kolling Institute want to know your goals of care with respect to your medications and health.

This survey (approximately 15 minutes) includes questions about your goals of care and your medications and any preferred technologies (websites, emails, text messages, apps) to help you communicate your goals of care to healthcare practitioners.…

Participating states:
All States
Occurring dates:
to

Many people with dementia wait longer than they should for a diagnosis, which can cause more anxiety and delays in accessing the necessary health services. The Centre of Research Excellence in Enhanced Dementia Diagnosis (CREEDD) was funded to try and promote fast, accurate, and equal dementia diagnosis across Australia. A key part of this work is understanding what the experience is like…

Participating states:
All States
Occurring dates:
to

Changed behaviours (e.g., aggression, sexual behaviour, social inappropriateness) are common symptoms of younger-onset dementia, which includes early-onset Alzheimer’s disease and frontotemporal dementia. 

Positive Behaviour Support (PBS) is considered the most appropriate approach when responding to behavioural changes. Preliminary findings show that a PBS education program designed…

Participating states:
All States, New South Wales
Occurring dates:
to

Researchers from Central Queensland University are conducting a project to determine what persons with Younger Onset Dementia (YOD) in Australia need to support them to remain within the workplace for as long as possible and then support their transition into retirement.

The team are currently conducting an online survey to generate expert consensus regarding occupational therapy…

Participating states:
All States
Occurring dates:
to

If you or someone you love is increasingly becoming forgetful, experiencing difficulties in planning and problems solving, or gets lost in familiar places, these could be signs of early Alzheimer’s disease.

Consider participating in the study if:

  • You (may) have early Alzheimer’s disease
  • You are between 55 and 85 years old.
  • You have a study partner (a next…
Participating states:
New South Wales
Occurring dates:
to

Researchers from the University of New South Wales and other collaborating Australian Universities are conducting a project about life story work and advance care planning. In this project, the researchers aim to see whether life story work and advance care planning helps people to get clearer about their wishes for future care, and whether it improves wellbeing.

The team are currently…

Participating states:
All States
Occurring dates:
to

People with dementia can have difficulty communicating their feelings or letting someone know that something is wrong. Our research aims to find the best ways to help people with dementia to provide feedback and have conversations about their care. We will co-design free resources to help people with dementia engage in important conversations. We would like to hear about your experiences of…

Participating states:
All States
Occurring dates:
to

People living with dementia often take a large number of medications. Some of these medications may have been beneficial when originally prescribed but may become inappropriate overtime with changing goals of care. Deprescribing is reducing or stopping harmful medications. Taking a smaller number of medications has many potential benefits (e.g. fewer falls, better quality of life). Currently,…

Participating states:
All States
Occurring dates:
to

People living with dementia can experience reduced opportunities for engaging in purposeful activities and may experience a reduced sense of contributing to the community. This can be addressed via community gardening, which has a range of benefits for people living with dementia, including improved wellbeing, appetite, sleep, positive emotion, and social benefits.

We are looking to…

Participating states:
Queensland
Occurring dates:
to