Younger onset dementia and the NDIS

Supporting people with younger onset dementia in the National Disability Insurance Scheme (NDIS)

The National Disability Insurance Scheme (NDIS) is the new way supports will be provided to eligible Australians with a disability or disease such as younger onset dementia.

The purpose of the NDIS is to provide people with greater choice, individualised support and the flexibility to manage these supports.

The NDIS began in a number of trial sites around Australia from July 2013 where younger onset dementia key workers in those areas worked with their clients to navigate the scheme.

As of 1 July 2016, the NDIS was formally launched and is being introduced in stages across Australia. The NDIS will roll out incrementally over three years to ensure it is successful and sustainable.

Your existing supports will remain in place until the NDIS is available in your area.

Contacting a younger onset dementia key worker about the NDIS

If you are an existing Younger Onset Dementia Key Worker Program participant contact your younger onset dementia key worker to learn more. If you are not currently participating in the program, the best way to access the Younger Onset Dementia Key Worker Program is to call the National Dementia Helpline on 1800 100 500.

People living with younger onset dementia are now better equipped to understand and navigate the NDIS through the release of the NDIS Toolkit for People Living with Younger Onset Dementia and their Carers

The toolkit is complemented by a short video featuring carers and people living with younger onset dementia to assist others as they apply to access the new system.

Learn more about what is happening in your state or territory:

Australian Capital Territory

New South Wales

Northern Territory


South Australia



Western Australia