The Dementia Australia Advisory Committee
The purpose of the Dementia Australia Advisory Committee is to elevate the voice of people living with dementia on a national platform.
The committee informs Dementia Australia about the priorities of people living with dementia in regards to, advocacy, policy, service delivery and program development.
The committee was established in 2013 in response to people with dementia around the country who wanted to be involved in advocating for the needs of people with dementia and their families.
The committee is made up of people living with dementia who are active advocates in their communities. It is the third of its kind in the world, and the first in Australia.
Members meet monthly via video conference with regular communication through email.
Current members of the Dementia Australia Advisory Committee include:
Phil is a busy and enthusiastic Advocate for Dementia Australia and one of the first to be partnered with an Assistance Dog. Phil is Chair of the Dementia Australia Advisory Committee and participates in research projects. He has spoken at numerous forums and events and has actively represented people with dementia in media interviews, focus groups, program development and research projects. Phil has travelled extensively presenting at Low Vision Conferences in Japan, New Zealand, United States and Thailand. His major subject was Electronic Magnification for those living with Macular Degeneration.
Eileen lives in Queensland and is a retired health professional with more than 20 years’ experience as a Personal/Rehabilitation Counsellor. Eileen has been actively involved internationally and presented at numerous national and overseas conferences. Eileen is the Secretary of Dementia Alliance International and hosts their Australia online weekly support group. Eileen is the Vice-Chair of the Dementia Australia Advisory Committee.
Dennis was born in country NSW in the mid-1950s, and is old enough to have witnessed the Luna Landing in 1969 but young enough to have avoided conscription. He has had a variety of careers, working in education, Petroleum Exploration and IT for more than 20 years. At 59 he was diagnosed with frontotemperal dementia. In 2014 he became involved in the Dementia Friendly Kiama Pilot and was elected chair of the Advisory Group. He is an active advocate for all with dementia.
Roberta (Bobby) Redman
Bobby is a retired psychologist now living on the Central Coast, NSW. Bobby, who is living with frontotemporal dementia, is relatively new to consumer advocacy. She sits on a number of research steering committees and dementia advisory groups, as well as having served on several boards professionally. As a Rotarian, Bobby also has experience in fundraising, presenting, training and mentoring.
Kevyn is a retired furniture maker, artist and an experienced businessman who was originally diagnosed with MCI in 2015. Now living in Wodonga, Victoria, he has always been an active health advocate, having helped established a men’s indigenous health group in Northern Queensland in the past. He has also established an online group for people with mild cognitive impairment and dementia, which has members from across the globe.
Sarah worked for more than 40 years with NSW Health. Diagnosed with the symptoms of younger onset dementia caused by hydrocephalus in 2013, she had to medically retire at this time. Since then Sarah has actively worked as a Dementia Advocate. Sarah is working on a number of committees with Mid North Coast Local Health District and Dementia Australia. Sarah and a small group of enthusiastic gardeners also volunteer with caring for the dementia garden at Port Macquarie Dementia Australia branch office.
Val is a retired farmer / health professional with 32 years’ experience including as a community physiotherapist in Ballina, NSW. Val, who is living with dementia, is a passionate advocate and has experience from her work as a senior board member of Dementia Alliance International. She is also actively involved with Dementia Friendly Communities (DFC) through her role on the National DFC Advisory Committee and the local Ballina DFC Steering Committee.
Past members of Dementia Australia Advisory Committee
We would like to thank the following past members of the committee for their expertise and significant contributions to the committees work.
• Kate Swaffer (inaugural)
• Ian Gladstone
• Eric Garnett
• John Hiller
• Di Harris
• Maxine Thompson
• David Waddell
• Steve Coleman
• Edie Mayhew
• Keith Glance
• Glenda Parkin
• Judy Galvin
If you would like to get in touch with the committee please email DAAC@dementia.org.au.