'Knowing the Person': A co-designed ready-to-implement approach to enhance person-centred home care for people living with dementia

Queensland University of Technology

‘Knowing the Person’ is essential to ensure that in-home respite care for people living with dementia is person-centred.

This study aims to find out what people living with dementia and their carers perceive as essential information, and the barriers and enablers to achieving ‘Knowing the Person’ in in-home respite care.

The findings will help develop an approach that supports ‘Knowing the Person’ with dementia and enhances person-centred in-home respite care

This study has been approved by the Queensland University of Technology Human Research Ethics Committee (10233- HE31 (QUT))

Participation

Participation involves Attending a 1:1 online interview via Zoom (30 minutes). People who meet the following criteria may be eligible to participate:

People living with mild dementia, mild cognitive impairment or mild memory changes who:

are aged over 18 years and able to speak and understand English
live in their own home in Australia (including those receiving formal home care services and those who are not)
self-report a diagnosis of mild dementia or mild cognitive impairment, or self-report experience of mild memory changes
can provide informed consent to participate
can access a computer with internet for an online Zoom interview (the researcher can support setting up the Zoom interview)

Family carers of people living with dementia who:
• are over 18 years old and able to speak and understand English;
• have used or are using in-home respite care services for people living with dementia;
• have at least 3 months of experience supporting a person living with dementia in a home setting; and
• can access a computer with internet for an online Zoom interview (the researcher can support setting up the Zoom interview).