A Longitudinal Study of Social Experiences Among Dementia Family Caregivers

Caregivers of people with dementia often experience high levels of social isolation and loneliness, which can lead to depression, anxiety, and poorer overall wellbeing. These challenges may be even greater for caregivers from ethnic minority backgrounds, who may also encounter language barriers, cultural expectations, and limited access to support services. Although these issues are increasingly recognised, there is still limited understanding of the specific factors that influence social isolation and loneliness in culturally diverse caregiver populations. Researchers at Macquarie University are conducting a longitudinal survey to investigate this further.

To be eligible to participate, you must:
• Be 18 years or older (or 17 years or older if participating via SONA);
• Provide regular care for a family member with dementia living in the community;
• Have been providing care for at least six months;
• Mainly speak English or a Chinese dialect at home; and
• Be from a Chinese or Anglo-Saxon background

Eligible participants will complete two surveys approximately six months apart. Each survey takes about 25–40 minutes. Surveys can be completed online, via telephone, in person, or on paper. Participants who complete both surveys will receive a $20 gift voucher to thank them for their time.

Below are the links to complete the survey, choose the link most appropriate for you:

繁體中文:
https://mquni.au1.qualtrics.com/jfe/form/SV_0upFuVbsvMgc6to?Q_Language=ZH-T

简体中文:
https://mquni.au1.qualtrics.com/jfe/form/SV_0upFuVbsvMgc6to?Q_Language=ZH-S

English:
https://mquni.au1.qualtrics.com/jfe/form/SV_0upFuVbsvMgc6to