Transparency in Artificial Intelligence (AI): What Should Health Services Tell Consumers and Carers When AI Writing Tools Are Used?

Health services are increasingly using artificial intelligence (AI) writing tools to draft, edit, simplify and translate written health information such as discharge summaries, clinic letters, patient portal messages and patient information resources.

This national study is exploring what consumers, carers and health service staff think health services should tell people when AI writing tools are used. The findings will help inform the co-design of practical resources to support transparent, patient-centred communication about the use of AI in healthcare.

The study is particularly relevant for people living with dementia, their families and carers, who often rely on clear, accessible and trustworthy health information to support healthcare decisions and navigate complex care journeys.

We are inviting Australian adults aged 18 years and over who identify as a healthcare consumer, carer, family member, support person and/or health service staff member to complete a short anonymous online survey.

The survey takes approximately 10 minutes to complete and asks about topics including transparency, trust, accountability and consent when AI writing tools are used in healthcare communication.

Participation is voluntary. No identifying information is collected through the survey. Participants may optionally provide their email address via a separate Expression of Interest process if they would like to receive a plain-language summary of the study findings and information about future co-design workshops that will develop resources to support transparent communication about AI use in healthcare.

Survey closes: 24 December 2026

Survey link: https://forms.cloud.microsoft/r/Q4gs76DLxx