Experiences in accessing post-diagnostic care for people with Young Onset Dementia

This research aims to explore people’s experiences of accessing post-diagnostic support following a diagnosis of young onset dementia. In particular, the study focuses on individuals’ experiences of seeking support through the National Disability Insurance Scheme (NDIS), including barriers encountered, helpful aspects of the process, and areas where the system could be improved. Understanding these experiences may help inform recommendations to improve access to appropriate supports for people living with young onset dementia and their families

Participation in the study will include completing an online survey requiring approximately 30 minutes of people's time. The survey can be completed by people living with young onset dementia, their family members and/or carers, as well as formal support workers or service providers. 

If you are interested in completing the survey, please click HERE