Expressed Emotion of Carers of People with Dementia from Culturally and Linguistically Diverse Backgrounds: Toward a Co-designed Communication

This study looks at how people who care for someone with dementia communicate and express their feelings, especially among those from Chinese cultural backgrounds. 

It aims to understand their experiences and develop better, culturally appropriate ways to support communication between carers and people with dementia.

The goal is to create a practical program that helps improve relationships and well‑being for both carers and the people they support. 

This project has three parts. 

1. Study 1 explores carers’ experiences and communication
2. Study 2 reviews online dementia advice in Australia
3. Study 3 co‑designs practical communication strategies. 

Carers from Chinese backgrounds will be invited to a one‑on‑one interview (Study 1) and, if suitable, may join two group workshops with the person they care for (Study 3).

People who meet the following criteria may be eligible to participate:

• Informal carers
• aged 18+ 
• speak Chinese (Mandarin or Cantonese) at home
• currently or previously caring for someone with dementia residing in the community 

Participants receive a $50 gift card for the interview and $100 per person for each workshop attended.