Investigating risk factors for carer burden and distress in family carers of people with dementia

Most of the care and support provided for people living with dementia is provided by family and friends and takes place away from healthcare services. The impact of supporting a person with dementia is significant - it requires substantial commitment of time over months to years, and it can be emotionally, physically and socially taxing. The aim of this study is to better understand the carer experience from a negative and positive stance.

Participants must be over 18 years of age, living in Australia, and currently providing care to a family member or friend living with dementia.  Participation is the online completion of a survey.  

You will be asked to complete a 30-minute survey that covers several topics related to caring for a person with dementia. You will be asked questions about your knowledge of dementia, your response to changed behaviours, your experience of dementia-related stigma, the impact of caring on your life, your mood, and the positive aspects of caring. 

Please click on this link to complete the survey.