I live with dementia – these are the practical ways people support me

Lee pictured with her sisters (L-R Jill, Carolyn and Lee):

My two sisters are quite remarkable in their support of me by giving unconditional love and being understanding, humorous and thoughtful.

I live alone and long ago we discussed my sisters' support particularly around sensitive topics.

They visit me every week and as we sew we discuss families, gardens, food and books.  

Understanding the necessity to develop new skills, my little sister is teaching me the art of English paper piecing.  

My children do not live in Australia however they too contact me two or three times a week.

My dementia diagnosis is very recent however I was diagnosed with Parkinson’s disease four years ago.

Recognising comorbidity can be very prudent as so often treatment can be transferable.

Ann:

My family and close friends were well informed of my diagnosis from an early stage.

I think this has helped in that they too have been able to use the Dementia Australia website to research information that they have felt useful.

It’s helped them to increase their understanding of my dementia including what to expect and where to go for further help or information.

By becoming a Dementia Advocate my husband, as a carer, has found support in advocate group including the state advocate meetings and speaking with other carers.

Peter:

I’ve been a lifelong golfer and I have a group of friends who go out of their way to make sure I’m included in regular golf games.

It means that for the couple of hours that I’m playing golf, I’m doing something familiar – I forget about my illness and they treat me as an equal.

Also, although I still drive, I have benefitted from someone else taking over driving to unfamiliar locations which alleviates stress.

I still drive locally which gives me some independence.

Want more tips or support?

If you would like support, advice or information about any type of dementia-related issue, including supporting a person living with dementia, contact the National Dementia Helpline.

The National Dementia Helpline is available 24 hours a day, seven days a week, 365 days a year on 1800 100 500 or via our live chat.

You can also visit the Tips and resources for reconnection page on the website for more tips and resources.

Thank you to the Dementia Advocates who contributed to this story. If you want to know more about this program visit the Dementia Advocates Program page on the website.