Younger onset dementia

Support for younger onset dementia

Dementia can happen to anyone – including people under the age of 65. Often, people do not expect younger people to have dementia, so it can come with unique social, emotional and financial challenges.

For example, you or the person may be:

  • in full-time employment
  • actively raising a young family
  • financially responsible for a family
  • physically strong and healthy. 

You don’t have to navigate these challenges alone. Dementia Australia has an online hub of useful information, resources, support to help you live well with dementia.  

How to access support for younger onset dementia

Dementia Australia is here to help - both now and in the long run.

The younger onset dementia hub

With the support of the National Disability Insurance Agency (NDIA), we have developed the ‘younger onset dementia hub’. 

Created in consultation with people living with younger onset dementia, it informs, educates and provides support unique to the challenges of those under 65. It also serves as a valuable resource for your family, carers and medical professionals.

Browse the younger onset dementia hub now.

NDIS support coordination

Dementia Australia is a National Disability Insurance Scheme (NDIS) registered service provider. If you are living with younger onset dementia and need help coordinating your supports and services funded under your NDIS plan, we can help.

Your support coordinator can: 

  • teach you how to navigate the NDIS
  • help you understand and manage your plan
  • assess all your support options and help you choose the best provider for you
  • negotiate services on your behalf, including prices, service agreements and bookings
  • Work with your local area coordinator and other providers to ensure you get the best value from your NDIS plan
  • assist you with any problems that arise
  • help you prepare for your annual plan review. 

To find out more, call us via the National Dementia Helpline on 1800 100 500.