Printable information for patients, clients and families
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Printable PDF help sheets
Explore our library of printable help sheets on the most popular dementia-related topics, for your patients and clients.
About dementia
- 1Information about dementiaDementia is a brain condition. It’s not a normal part of ageing. Learn more about what dementia is, its symptoms, diagnosis, treatment and support. 
- 2Diagnosing dementiaThere isn’t one single test that tells you if you have or don’t have dementia. Instead, doctors will do several different kinds of test. 
- 3Information for family and friendsNearly 1.6 million Australians are involved in the care of someone living with dementia. We have information, advice and support specifically designed for you and your needs. 
- 4Information for young peopleAre you a young person who knows someone with dementia? This is the page for you. 
- 5Early planningAs your dementia progresses, you may no longer be able to make decisions on your own. It might be hard to think about, but by planning ahead and communicating your decisions, you can make sure your wishes are respected. 
- 6Drug treatments and dementiaMedication-based treatment options for various forms of dementia, their symptoms and comorbid conditions. 
- 7Genetics of dementiaIf there’s dementia in your family history, or you’ve been diagnosed with dementia, you probably have questions about genes. 
- 8Dementia researchResearchers are always working to learn more about dementia and how people live with dementia conditions 
- 9Memory changesIf you or a loved one have concerns about changes to memory, mood or thinking, there is support and information to help you. 
- 10Alzheimer's diseaseThe most common form of dementia, Alzheimer’s disease is a physical brain condition resulting in impaired memory, thinking and behaviour, where a person’s abilities deteriorate over time. 
- 11Down syndrome and Alzheimer's diseaseDiagnosing Alzheimer’s’ disease in people with Down syndrome can be difficult as Alzheimer’s symptoms may be considered part of the Down syndrome. 
- 12Vascular dementiaVascular dementia is caused by damage from restricted blood flow in your brain. 
- 13Alcohol related brain injury and Wernicke-Korsakoff syndromeRegularly consuming alcohol at risky levels can cause alcohol-related brain injury (ARBI), which can affect your thinking, memory, personality and movement. 
- 14HIV associated dementiaHIV-associated dementia is the most severe form of HIV-associated Neurocognitive Disorder. It affects your thinking, mood, behaviour and movement. 
- 15Lewy body disease“Lewy body dementias” is an umbrella term describing two forms of dementia: dementia with Lewy bodies and Parkinson’s disease dementia. 
- 16Younger onset dementiaYounger onset dementia is any form of dementia in people under the age of 65. It’s sometimes called “early-onset dementia”. 
- 17Posterior cortical atrophyIf you have posterior cortical atrophy, tissue in your brain atrophies (shrinks) as cells are lost. 
- 18Dementia terminologyDementia is a brain condition. It’s not a normal part of ageing. Learn more about what dementia is, its symptoms, diagnosis, treatment and support. 
- 19Chronic traumatic encephalopathy (CTE) dementiaChronic traumatic encephalopathy (CTE) dementia affects your brain’s ability to function. Repeated head injuries cause the condition. 
Changed behaviours and dementia
- 1Changes in behaviourDementia can change the way someone feels and behaves. These changes might be subtle or dramatic. They might come and go, or persist. 
- 2Understanding changes in behaviourEvery person experiences dementia differently, this section explores common mood and behaviour changes. 
- 3Depression and dementiaDementia affects a person’s emotional state. Dementia can also be a distressing experience. As a result, depression is very common among people living with dementia. 
- 4WanderingIt’s common for people living with dementia to wander. This can be confusing and frightening for both the person with dementia and the people who care for them. 
- 5Restless behaviour in the afternoonSome people with dementia become more confused, anxious or restless in the late afternoon or early evening. 
- 6Anxious behavioursSomeone living with dementia might become increasingly anxious. Learn about the causes of anxiety, and what to do if the behaviour occurs. 
- 7Agitation and aggressionDementia changes people’s behaviour and emotions. Sometimes, people living with dementia can become agitated or aggressive. 
- 8Hallucinations and false ideasDementia can cause people to sense or believe things that aren’t real. Although they’re not real, they can feel real and sometimes very scary to the person experiencing them. 
- 9Disinhibited behavioursInhibitions are the self-control mechanisms we all have that stop us doing things that break the rules of our society. 
Looking after families and carers
- 1Taking a breakRegular breaks from your caring role mean you can rest, go out, get some things done, change your scenery and recharge. 
- 2Taking care of yourselfIt’s okay to spend time taking care of yourself. Not only because you’ll be better able to care for your loved one, but just because you’re a person who deserves care. 
- 3FeelingsBecoming a carer, whether it happens suddenly or over time, can come with some big, difficult emotions. 
- 4Asking for helpInvolving other people in your care helps you, and can be a terrific way to help the person with dementia stay socially active, too. 
- 5Grief and bereavement after the death of someone with dementiaLosing someone you love to dementia is heartbreaking. It can take a while to process the range of emotions you may feel after their death. 
Caring for someone with dementia
- 1Communication approaches and therapiesIt’s a basic human need to be able to express yourself and be understood by other people. 
- 2Safety issuesFor people with dementia, some everyday activities can get harder. But there are things you can do to help. 
- 3Caring for someone who lives aloneDementia can affect almost every aspect of everyday life. But there are things you can do to make home life safer and easier, so you can keep living the best life you can. 
- 4ActivitiesFrom a favourite hobby to coffee with a friend, activities can help someone with dementia stay socially active and engaged. 
- 5Making the most of respite careRespite care is a form of short-term, temporary professional care for a person living with dementia. 
- 6DrivingDriving is complex. To do it, you use your manual skills, senses, reflexes, memory, concentration and thinking, all at once. 
- 7TravellingTravel is a great joy, and everyone loves a holiday. If you have dementia, or you’re planning to travel with someone who has dementia, travel becomes more complicated. 
- 8Working with doctorsIf someone you care for is diagnosed with dementia, they’ll probably be treated by a range of medical and healthcare professionals. 
- 9Going to hospitalIf you’re caring for someone who needs to go to hospital, there are some things you can do to make their stay more comfortable. 
- 10PainPeople living with dementia feel pain, just like everyone else. But it might be hard for them to understand or explain their pain. 
- 11Eating changesIf you’re caring for someone with dementia, you might notice changes in the way they experience food and eating. 
- 12NutritionA good diet is essential to good health. Learn what to eat, what to avoid and what to expect when you’re living with dementia. 
- 13Dental careOur teeth, gums and oral hygiene are important to our health and wellbeing. Dementia can affect a person’s oral health and their ability to care for their teeth. 
- 14Getting dressedDementia can make it more difficult to get dressed or undressed. Find out what you can do to make the process easier. 
- 15Changes to sleepWe all feel better when we get enough sleep. That’s also true for people living with dementia. 
- 16Hygiene supportSome people with dementia find tasks like bathing, shaving and dressing difficult. These tips can help you support their personal care. 
- 17IncontinenceIncontinence can happen to anyone. Dementia can make it harder to know when you need to go to the toilet, what to do when that need happens. 
- 18Intimacy and sexualityDementia can affect how you feel about sex and intimacy. These are some of the changes that may occur, and advice for you and your partner. 
- 19Later stages of dementiaInformation and advice about the later stages of dementia, end of life and beyond. 
- 20Palliative care in the terminal stage of dementiaPalliative care can help to maintain someone’s comfort and quality of life in the later stages of dementia. Here’s a guide to what you can expect. 
Residential care and dementia
- 1Residential aged careIf you’re caring for someone with dementia, you may need to make the decision to move them to residential care. Here are the key steps, and the support you can get. 
- 2Choosing a residential aged care homeTrying to find the right residential care home can be overwhelming, so it’s helpful to break it down into steps. 
- 3Working with the care homeOnce your friend or family member has moved into residential care, your role will change, but you can still play an important part in their care. 
- 4Moving into residential careOnce you’ve decided on a care home, it’s time to start organising the move. You might need to make a decision very quickly once a place becomes available, so it’s worth working out in advance what you need to do. 
- 5Visiting someone living in a care homeVisiting a loved one with dementia can make a big difference to both of you. Here’s how to make the most of your time together. 
Information for people with dementia
- 1What is dementiaDementia is a brain condition. It’s not a normal part of ageing. Learn more about what dementia is, its symptoms, diagnosis, treatment and support. 
- 2Early planningAs your dementia progresses, you may no longer be able to make decisions on your own. These are some key considerations and documents to help you plan for the future. 
- 3Looking after yourselfBy looking after your mind and body, you can live the best life you can with dementia, and reduce your need for extra care. 
- 4DrivingDementia reduces your ability to drive safely. Learn the warning signs and your options if you need to stop driving. 
- 5Living aloneLike many Australians, you might currently live alone. A dementia diagnosis doesn’t automatically mean you need to move. 
- 6Feelings and adjusting to changeIf you’ve just been diagnosed with dementia, there’s a lot to take in. Here are some things you can do to cope, get support and work out what to do next. 
- 7Keeping involved and activeStimulating activities help people living with dementia stay engaged and motivated. Here are some tips and ideas to make activities more enjoyable for everyone. 
- 8Talking about the diagnosisTelling your family and friends about your dementia diagnosis can be difficult. You might need some time to come to terms with the news yourself before you talk to anyone. 
- 9Talking with your doctorDoctors play a vital role in the care and support of people with dementia. Here’s how you can work effectively with them. 
- 10Making employment decisionsDementia can affect your ability to stay in a job. Find out what you can do, your rights and how to make decisions about employment. 
- 11Changes to attention and memoryIf you or a loved one have concerns about changes to memory, mood or thinking, there is support and information to help you. 
- 12Dental healthOur teeth, gums and oral hygiene are important to our health and wellbeing. Dementia can affect a person’s oral health and their ability to care for their teeth. 
- 13Respite CareRespite care is a form of short-term, temporary professional care for a person living with dementia. 
Dementia-friendly environments
- 1Creating a dementia-friendly homeA dementia-friendly home is a place where changes have been made that make it easier for someone with dementia to live in. Learn how to make your home more dementia-friendly and safe. 
- 2Tools and aids to help at homeDementia can make everyday life harder. But there are tools, aids and technology that can help you live the best life you can. 
- 3Designing dementia-friendly care environmentsA well-designed care environment can enable people living with dementia to make the best of everyday life. 
Aboriginal or Torres Strait Islander people
- 1What is dementia?PDF — 93 kBDementia is a word used to describe many illnesses that make the way people think and act change and keep changing. Find out more. 
- 2What is dementia?PDF — 93 kBDementia is a word used to describe many illnesses that make the way people think and act change and keep changing. Find out more. 
- 3Diagnosing dementiaPDF — 132 kBLearn the early warning signs of dementia, and what kinds of tests you can get if you're concerned. 
- 4Information for family and friendsPDF — 104 kB
- 5Alzheimer's diseasePDF — 97 kBAlzheimer’s disease is the most common form of dementia. Learn about its causes, symptoms, stages and treatment. 
- 6Family, friends and communityPDF — 6 MBInformation, tips and strategies on staying connected to people living with dementia. 
Lewy body disease
- 1Lewy body disease“Lewy body dementias” is an umbrella term describing two forms of dementia: dementia with Lewy bodies and Parkinson’s disease dementia. 
- 2Cognitive (thinking) changes in Lewy body diseaseYou might have changes to your thinking abilities that could last for minutes, hours or days. They’re called cognitive fluctuations. 
- 3Neuropsychiatric (behavioural) changes in Lewy body diseaseA guide to professional Lewy body dementias care for acute care workers and staff in care homes. 
- 4Signs and symptoms of the Lewy body dementiasBoth kinds of Lewy body dementia affect your thinking, behaviour, movement and bodily functions. 
- 5Diagnosing Lewy body dementiaThe Lewy body dementias can be hard to diagnose, because there can be a variety of symptoms in the early stages. 
- 6Lewy body disease information for home care and community respite workersA guide to professional Lewy body dementias care for acute care workers and staff in care homes. 
Younger onset dementia
- 1Younger onset dementia: the factsYounger onset dementia is any form of dementia diagnosed in people under the age of 65. Learn the facts for people living with younger onset dementia. 
- 2Planning aheadAs your dementia progresses, you may no longer be able to make decisions on your own. These are some key considerations and documents to help you plan for the future. 
- 3Living With Younger Onset Dementia ProgramA program for people recently diagnosed with younger onset dementia, including information, advice and support. 
- 4Family engagement counselling for younger onset dementiaDementia Australia’s free counselling service for families where someone lives with younger onset dementia. 
Tips to assist social engagement
- 1For family, friends and carersWe have information, advice and support specifically designed for you and your needs. 
- 2Visiting someone with dementiaVisiting a loved one with dementia can make a big difference to both of you. Here’s how to make the most of your time together. 
- 3Special occasionsSpecial occasions are a time to celebrate and enjoy. Discover tips to help make special occasions easier and more enjoyable for someone with dementia. 
- 4Activities for people with dementiaStimulating activities help people living with dementia stay engaged and motivated. Here are some tips and ideas to make activities more enjoyable for everyone. 
- 5Long-distance visitingPhone and video calls can also help you stay in regular contact with your friend or family member, particularly if you don’t live nearby 
Brain health
- 1Reduce your risk of dementiaDementia isn’t inevitable. 45% of all dementia cases are avoidable: find out what you can do to reduce your risk and prevent dementia. 
- 2Early warning signsLearn the most common early signs and symptoms of dementia, how to notice them, and what you can do if they happen to you. 
- 3The sooner you know, the more you can doIf you or a loved one have concerns about changes to memory, mood or thinking, there is support and information to help you. 
- 4Mild cognitive impairment (MCI)Mild cognitive impairment (MCI) is a brain condition that affects memory and thinking more than normal aging, but not as severely as dementia. 
Risk reduction
- 1Alcohol, tobacco and other drugsReducing your alcohol, tobacco and other drug consumption can protect your brain health and reduce your risk of developing dementia. 
- 2DepressionLike any other illness, depression can be treated, and there are good options for support. 
- 3Hearing and visionTaking care of your hearing and vision can help you reduce your risk of developing dementia. 
- 4Staying socialA good social life helps us feel like we belong, like we’re connected to the world around us. 
- 5Protect your headThe best way to reduce your risk of CTE dementia is to protect your head and avoid injury. 
- 6Heart healthThe more you do to take care of your heart, the better the result for your brain health. And it’s never too soon, or too late, to start. 
- 7Healthy habitsHow do you turn a good intention into a regular habit? 
- 8Mental exerciseJust like your body, your mind gets stronger when it works out. 
- 9SleepGood sleep means good brain health. Find out how to get the most out of your bedtime routine and reduce your risk of developing dementia. 
- 10Physical exercisePeople who are physically active throughout their lives, particularly from age 65 on, are less likely to develop dementia. 
- 11NutritionEat well for a healthier heart, body and mind and reduce your chance of developing dementia. 
Support
- The National Dementia HelplineCall 1800 100 500 for free and confidential expert information, advice and support, 24 hours a day, seven days a week, 365 days a year. 
- Get supportNo matter how you are impacted by dementia, we are here to help. Learn more about all support services offered by Dementia Australia. 
- The Dementia Australia LibraryThe Dementia Australia Library provides free access to Australia’s largest collection of books, articles, audiobooks and ebooks about dementia. 
- TechnologyInnovative apps, online and virtual reality experiences for people living with dementia, families, friends and carers, and workers in the aged care and health fields. 
- Family engagement counselling for younger onset dementiaDementia Australia’s free counselling service for families where someone lives with younger onset dementia. 
- The Dementia GuideThe Dementia Guide is the go-to resource for people living with dementia, their carers and family. Download, listen or order a free printed copy. 
For professionals
- 1Refer someone in your careIf you’re a healthcare professional, you can refer a patient or client to Dementia Australia for further information, advice and support. 
- 2Professional development and trainingDementia Australia's innovative, proven dementia training courses for organisations and individual health workers supporting people living with dementia. 
- 3Aged care workersProfessional development, training and resources for aged care workers. 
- 4Allied health workersProfessional development, training and resources for allied health workers 
- 5Dementia expert consultanciesDementia Australia provides expert advice to help you transform dementia care in your aged care, acute care, hospital or community care organisation. 
- 6Disability care workersProfessional development, training and resources for disability care workers. 
- 7GPs and other referrersDementia referral and dementia information for GPs and other referrers, and your patients and clients, from Dementia Australia. 
- 8Home and community care workersProfessional development, training and resources for home and community care workers. 
- 9Hospital staffProfessional development, training and resources for hospital staff. 
- 10NursesDementia information, training and referral pathways for you and your patients, from Dementia Australia. 
- 11Dementia Australia Research FoundationWe fund new and early-career researchers to pursue bold ideas that lead to breakthroughs in dementia diagnosis, treatment and support. 

